Patient Advocacy: Why It Matters

By: Anne Berger, Head of Alliance Development

We the Patients

Patients Rising Now Inaugural Fly-In where over 40 patients and caregivers came to Washington D.C. to represent the rare and chronic disease patient community.

Alamo Breast Cancer Coalition Patient Advocate Program at SABCS

This program convenes breast cancer advocates at the San Antonio Breast Cancer Symposium to educate advocates and increase dissemination of the most up-to-date science and late-breaking information on breast cancer. This includes educational mentoring sessions with leading breast cancer clinicians and researchers, sessions on the FDA approval process and patient-focused drug development and “advocate chats” with oncologists, researchers, and advocate examining important issues in the breast cancer community.

Diabetes Patient Advocacy Coalition (DPAC) State Advocacy Forums

DPAC educates advocates about the structure of state government and policy landscape in each state, provides an overview of key topics impacting people with diabetes and shares tips on how to be an effective advocate.

DPAC Federal Policy Forum/Hill Days

The Diabetes Patient Advocacy Coalition’s (DPAC) annual advocacy event includes patient education briefing about key federal policy issues and opportunities for diabetes advocates to meet with their Congressional delegation and talk about what they can do to address the diabetes community’s unique needs.

Allergy Asthma Network’s 25th Annual Allergy Asthma Day on Capitol Hill

This annual event convenes advocates from around the US to meet with their congressional delegation to support legislation impacting people with asthma, allergies, COVID-19, and related conditions. In 2022, about 50 advocates attended in person and participated in 75+ meetings with members of Congress, while 343 advocates joined AADCH virtually.

COPD Foundation IMPACT Lung Health

This virtual advocacy event hosted by the COPD Foundation focused on encouraging Members of Congress to support policies critical to improving the lives of people living with COPD. In 2022, 31 volunteer COPD Foundation patient and caregiver community members representing 21 states participated.